February 22, 2021

New Resource! Common Labs and What They Mean in Duchenne

A variety of laboratory tests are often obtained in the assessment and treatment of Duchenne, and those laboratory tests can be incredibly confusing and variable in nature. As such, PPMD has developed a new resource…

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February 17, 2021

New Resource! Safe & Unsafe Medications in Duchenne

Many years ago, PPMD developed a one-page resource of safe and unsafe medications in Duchenne. While many of those medications are now discussed in various related sections of our website, we recognize the need for…

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February 16, 2021

Save the Date for PPMD’s Annual Conference: Virtual Edition – June 23-26, 2021

PPMD’s Annual Conference – Virtual Edition June 23-26, 2021 It’s hard to believe that we are still in this pandemic. We are getting closer to safer days ahead and we want our Duchenne and Becker…

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February 10, 2021

“See you on the Road”: PPMD’s End Duchenne Tour 2021 Stops

Stemming from our PPMD’s Connect Roundtables, PPMD’s End Duchenne Tour stops were formally established in 2015 as the Every Single One Tour. Tour stops are typically one-day long events, providing updates on the latest clinical…

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February 4, 2021

WATCH: Planning For Your Future – Navigating Benefits & Finances

Last week we were joined by Amber Sapp, parent, and Leona Filis, attorney, to discuss planning for your family’s future in regards to benefits and finances. Although these subjects can feel overwhelming, Amber and Leona…

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January 26, 2021

COVID-19 Vaccination & Duchenne | Priority Access – Sample Letter

As states continue to move through their Phase 1 COVID-19 vaccination distribution protocols, PPMD wants to make sure you are equipped with resources to advocate for priority access. For this reason, we have developed a…

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January 15, 2021

COVID-19 Vaccination & Duchenne: How mRNA Vaccines Work

As vaccines become available to help protect against COVID-19, PPMD is here to help you find answers to questions you might have about them. Here, with the help of Drs. Tim Cripe and Tim Franson,…

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January 15, 2021

COVID-19 Vaccination & Duchenne: How mRNA Vaccines Work

As vaccines become available to help protect against COVID-19, PPMD is here to help you find answers to questions you might have about them. Here, with the help of Drs. Tim Cripe and Tim Franson,…

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January 7, 2021

PPMD Announces 2021 Certified Duchenne Care Center Inter-Institutional Collaboration Grant Program

Parent Project Muscular Dystrophy (PPMD) is pleased to announce the opportunity for members of our Certified Duchenne Care Center network to apply for a grant to support an inter-institutional collaborative project to focus on advancing…

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December 12, 2020

WATCH: COVID-19 Vaccination & Duchenne: What You Need To Know (Webinar Recording)

We all have spent the last several months doing our best to keep ourselves and our families safe, while adjusting to this new virtual world. PPMD recognizes this has been nothing short of challenging, and…

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