February 10, 2021

“See you on the Road”: PPMD’s End Duchenne Tour 2021 Stops

Stemming from our PPMD’s Connect Roundtables, PPMD’s End Duchenne Tour stops were formally established in 2015 as the Every Single One Tour. Tour stops are typically one-day long events, providing updates on the latest clinical…

Learn More

February 4, 2021

WATCH: Planning For Your Future – Navigating Benefits & Finances

Last week we were joined by Amber Sapp, parent, and Leona Filis, attorney, to discuss planning for your family’s future in regards to benefits and finances. Although these subjects can feel overwhelming, Amber and Leona…

Learn More

January 26, 2021

COVID-19 Vaccination & Duchenne | Priority Access – Sample Letter

As states continue to move through their Phase 1 COVID-19 vaccination distribution protocols, PPMD wants to make sure you are equipped with resources to advocate for priority access. For this reason, we have developed a…

Learn More

January 15, 2021

COVID-19 Vaccination & Duchenne: How mRNA Vaccines Work

As vaccines become available to help protect against COVID-19, PPMD is here to help you find answers to questions you might have about them. Here, with the help of Drs. Tim Cripe and Tim Franson,…

Learn More

January 15, 2021

COVID-19 Vaccination & Duchenne: How mRNA Vaccines Work

As vaccines become available to help protect against COVID-19, PPMD is here to help you find answers to questions you might have about them. Here, with the help of Drs. Tim Cripe and Tim Franson,…

Learn More

January 7, 2021

PPMD Announces 2021 Certified Duchenne Care Center Inter-Institutional Collaboration Grant Program

Parent Project Muscular Dystrophy (PPMD) is pleased to announce the opportunity for members of our Certified Duchenne Care Center network to apply for a grant to support an inter-institutional collaborative project to focus on advancing…

Learn More

December 12, 2020

WATCH: COVID-19 Vaccination & Duchenne: What You Need To Know (Webinar Recording)

We all have spent the last several months doing our best to keep ourselves and our families safe, while adjusting to this new virtual world. PPMD recognizes this has been nothing short of challenging, and…

Learn More

November 21, 2020

NEW – Fall 2020 Survey: Impact of the COVID-19 Pandemic on Duchenne

PPMD has launched our second COVID-19 Pandemic Impact Survey related to your experiences during the pandemic for accessing care, trials, and approved therapies. Thank you to everyone who completed our first survey earlier in the spring….

Learn More

November 10, 2020

PPMD’s Ground-Breaking Effort: An Update After One Year of Our Newborn Screening Pilot for Duchenne

14,000 Babies Tested in Partnership with New York State and NBSTRN; Data Presented at Association of Public Health Laboratories Newborn Screening Virtual Symposium Parent Project Muscular Dystrophy (PPMD) today announced that our Newborn Screening Pilot…

Learn More

November 4, 2020

Connect with the Experts: Key Takeaways from PPMD’s Endocrine Series

In case you missed it, over the past three weeks PPMD’s SVP of Clinical Care, Rachel Schrader was joined by Duchenne endocrine experts and members of the PPMD Adult Advisory Committee (PAAC) to discuss important…

Learn More