Blog

August 27, 2021

FDA’s Full Approval of Pfizer-BioNTech’s COVID-19 Vaccine Comarnaty: What Does It Mean?

We were excited to learn of the news of the FDA’s full approval of Pfizer-BioNTech’s Covid-19 vaccine, now marketed under the name Comarnaty, on Monday August 23, 2021. This is the first fully approved Covid-19…

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August 23, 2021

PPMD’s Physical Therapy Resources

PPMD’s Physical Therapy Resources Physical Therapy (PT) is an important area of care for every person living with Duchenne at every age. Whether you or your child practices PT with a community therapist, school-based therapist,…

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August 20, 2021

COVID-19 Vaccination Update

PPMD is closely following any changes or updates to current Covid-19 vaccine recommendations, including new recommendations for immunocompromised individuals. Under guidance of the Centers for Disease Control and Prevention (CDC) to understand how current guidelines…

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August 18, 2021

PPMD’s Back-To-School Resources

PPMD’s Back-To-School Resources As summer comes to an end, PPMD is here to guide you through planning for a safe and successful school year. We have a collection of classroom resources on our website and…

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New Resource! Duchenne Carriers: Your Questions Answered

Duchenne Carriers: Your Questions Answered Being a carrier of Duchenne can affect so many aspects of a woman’s life, including health care, family planning, and mental health. As part of our efforts to better understand…

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PPMD Is Moving to Washington, DC!

PPMD’s Main Office is Moving to Washington, DC! When Parent Project Muscular Dystrophy started in 1994, formed by a small group of parents and grandparents out of Ohio, we knew that one of our first…

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Rewatch PPMD’s 2021 Virtual Annual Conference

Did You Miss PPMD’s 2021 Virtual Annual Conference? PPMD’s 2021 Virtual Annual Conference was incredible with close to 2,000 families, care providers, researchers, scientists, and industry partners joining us for four days of informative updates…

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PPMD & Jesse’s Journey Award $172,000 (CAD) Clinical Fellowship in Duchenne Endocrinology & Bone Fragility

Parent Project Muscular Dystrophy (PPMD) and Jesse’s Journey today announced a collaborative research award of $172,000 (CAD) in support of a two-year Clinical Fellowship in Duchenne Endocrinology and Bone Fragility. The award will sponsor the fellowship of…

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WATCH: Connect with the Experts – Navigating the College Campus with Duchenne

PPMD’s Rachel Schrader and Mena Scavina recently moderated a fantastic Connect with the Experts: Navigating the College Campus with Duchenne webinar. They led a dynamic conversation around what the college experience may look like for…

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Take Part in the Duchenne Steroid Patient Experience Survey

Patient experience data is a critical tool for advancing drug development in Duchenne and for regulatory decision making. Steroids have been part of care standards for over two decades, however, there is a lack of…

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