August 18, 2021

PPMD’s Back-To-School Resources

PPMD’s Back-To-School Resources As summer comes to an end, PPMD is here to guide you through planning for a safe and successful school year. We have a collection of classroom resources on our website and…

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August 3, 2021

New Resource! Duchenne Carriers: Your Questions Answered

Duchenne Carriers: Your Questions Answered Being a carrier of Duchenne can affect so many aspects of a woman’s life, including health care, family planning, and mental health. As part of our efforts to better understand…

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July 1, 2021

PPMD Is Moving to Washington, DC!

PPMD’s Main Office is Moving to Washington, DC! When Parent Project Muscular Dystrophy started in 1994, formed by a small group of parents and grandparents out of Ohio, we knew that one of our first…

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June 30, 2021

Rewatch PPMD’s 2021 Virtual Annual Conference

Did You Miss PPMD’s 2021 Virtual Annual Conference? PPMD’s 2021 Virtual Annual Conference was incredible with close to 2,000 families, care providers, researchers, scientists, and industry partners joining us for four days of informative updates…

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June 16, 2021

PPMD & Jesse’s Journey Award $172,000 (CAD) Clinical Fellowship in Duchenne Endocrinology & Bone Fragility

Parent Project Muscular Dystrophy (PPMD) and Jesse’s Journey today announced a collaborative research award of $172,000 (CAD) in support of a two-year Clinical Fellowship in Duchenne Endocrinology and Bone Fragility. The award will sponsor the fellowship of…

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June 8, 2021

WATCH: Connect with the Experts – Navigating the College Campus with Duchenne

PPMD’s Rachel Schrader and Mena Scavina recently moderated a fantastic Connect with the Experts: Navigating the College Campus with Duchenne webinar. They led a dynamic conversation around what the college experience may look like for…

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May 17, 2021

Take Part in the Duchenne Steroid Patient Experience Survey

Patient experience data is a critical tool for advancing drug development in Duchenne and for regulatory decision making. Steroids have been part of care standards for over two decades, however, there is a lack of…

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May 11, 2021

FDA Approval of Pfizer-BioNTech’s COVID-19 Vaccine for 12-15 Year Olds

Yesterday, May 10, the FDA approved the Pfizer-BioNTech COVID-19 vaccine for use in children ages 12-15 years under emergency use authorization, the same approval seen with Pfizer’s, Moderna’s, and Johnson & Johnson’s adult vaccine approvals….

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May 5, 2021

Dr. Mena Scavina Joins PPMD as Certified Duchenne Care Center Program Advisor

I am very excited to announce that Dr. Mena Scavina has joined us as our Certified Duchenne Care Center Program Advisor! While we have an amazing team at PPMD which includes a number of healthcare…

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April 29, 2021

Safety Preparedness Toolkit for People with Duchenne

If we have learned anything over the past year, it is that life is unpredictable. Most of us did not anticipate a global pandemic or record-breaking freezing temperatures in Texas leading to a power crisis….

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