November 9, 2021

WATCH: Pediatric COVID-19 Vaccination (ages 5-11) & Duchenne (Webinar Recording)

On November 5, 2021, PPMD invited Drs. Tim Cripe and Tim Franson back for another COVID-19 vaccine webinar to provide updates on the new pediatric approval and what it means for the Duchenne community. Our…

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November 1, 2021

November is National Family Caregivers Month

To be fair, I find it a little odd that we celebrate caregivers for only a single month, when caregivers are caring for their loved ones every single day of every single month. In this…

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October 6, 2021

PPMD Completes Successful Pilot in Newborn Screening for Duchenne Muscular Dystrophy

PPMD’s Newborn Screening Pilot recently completed two years of ground-breaking recruitment. More than 36,000 families consented to participate and more than 36,000 babies have been screened for Duchenne Muscular Dystrophy in New York State. As…

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October 5, 2021

PPMD releases results of second survey on impact of pandemic on families

Since the start of the COVID-19 pandemic, Parent Project Muscular Dystrophy (PPMD) has surveyed Duchenne and Becker families to better understand how the patient experience with care, clinical trials, and access to approved therapies has…

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September 29, 2021

WATCH: Connect with the Experts – Cardiac Care

Watch: Connect with the Experts – Cardiac Care Last week PPMD’s Rachel Schrader moderated a webinar with expert cardiologists to discuss important topics related to cardiac medications, imaging, and advanced cardiac care. PPMD recognizes families…

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September 22, 2021

PPMD Continues to Support Carrier-Focused Research with Latest Award

Throughout the years, I have learned a great deal from working with boys and young men with Duchenne and Becker. I have also come to know their families well and a common concern for families…

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September 15, 2021

2021/2022 Flu Season: Stay Safe, Informed, and Healthy

With all of the attention on COVID-19, we don’t want to lose track of the need to protect against the flu.  The flu isn’t going away, and as  flu season approaches, we want to help…

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August 27, 2021

FDA’s Full Approval of Pfizer-BioNTech’s COVID-19 Vaccine Comarnaty: What Does It Mean?

We were excited to learn of the news of the FDA’s full approval of Pfizer-BioNTech’s Covid-19 vaccine, now marketed under the name Comarnaty, on Monday August 23, 2021. This is the first fully approved Covid-19…

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August 23, 2021

PPMD’s Physical Therapy Resources

PPMD’s Physical Therapy Resources Physical Therapy (PT) is an important area of care for every person living with Duchenne at every age. Whether you or your child practices PT with a community therapist, school-based therapist,…

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August 20, 2021

COVID-19 Vaccination Update

PPMD is closely following any changes or updates to current Covid-19 vaccine recommendations, including new recommendations for immunocompromised individuals. Under guidance of the Centers for Disease Control and Prevention (CDC) to understand how current guidelines…

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