Blog

The Power of Us Summit Series: Sibling & Teen/Adult Registration Now Open

The Power of Us is stronger than any of us alone. Over the past two years we have found ourselves stronger as a family unit in many ways. However, we have also come to realize…

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Carrier Care: Driving Improvements & Breaking Down Barriers

“Are you a carrier?,” they write in the hushed tones of private groups on social media, attaching anxious face and blue heart emojis in our new lexicon of connection and permission to express. What they…

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PPMD Announces Pediatric Certified Duchenne Care Center at Monroe Carell Jr. Children’s Hospital at Vanderbilt

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the certification of the clinic at Monroe Carell Jr. Children’s Hospital at Vanderbilt in Nashville, Tennessee….

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PPMD’s Power of Us Summit Series: Caregiver agenda is now available!

The Power of Us: Caregiver Summit — Agenda Is Now Available! April 28-30, 2022 | Atlanta, GA PPMD is excited to unveil our full agenda for The Power of Us: Caregiver Summit which will take place April 28-30,…

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PPMD Convenes 80+ Expert Cardiologists & Professionals for Duchenne Cardiac Care Meeting

PPMD is spending this week joined by 80+ expert cardiologists, key neuromuscular providers, members of the FDA and NIH, and industry partners to discuss cardiac care in Duchenne. We all know that the heart is…

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PPMD Awards $50,000 to the University of Pennsylvania for Launch of Duchenne and Becker Carrier Clinic Pilot

PPMD has always prioritized and advocated for optimal care for every person living with Duchenne and Becker. This began with the development of the care considerations, which translated into the standards by which PPMD’s Certified…

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PPMD’s Certified Duchenne Care Center Program – 2021 Impact & Progress

Every single person living with Duchenne deserves the best care possible. It is important that families know who is in charge of delivering the care they need and understand what centers are providing optimal, standardized…

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February 22, 2022

PPMD’s Power of Us Summit Series: Caregiver registration is now open!

The Power of Us Summit Series — Registration for Parents, Grandparents & Caregivers Is Now Open! April 28-30, 2022 | Atlanta, GA The Power of Us is stronger than any of us alone. Over the…

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February 11, 2022

Connect with PPMD’s Care Team

At PPMD, we place immense value on personal connection with the Duchenne community to provide support and partner with you on this complex journey. As our organization continues to grow, we aim to remain present,…

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January 26, 2022

Save the Date for PPMD’s Upcoming Events!

PPMD is excited to announce our 2022 schedule of educational events, including PPMD’s Annual Conference (hybrid in-person & virtual meeting), End Duchenne Tour (both in-person and virtual stops), and Advocacy Conference (virtual). New this year, PPMD will host The Power of…

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