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In an Emergency, Remember to T.H.I.N.K. — New PPMD Emergency Care Bundle Now Available!

New PPMD Emergency Care Resources Available As a parent, when your child has a medical emergency and your adrenaline kicks in, it can be difficult to remember all of the things you need to do…

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PPMD Announces Pediatric Certified Duchenne Care Center at UPMC Children’s Hospital of Pittsburgh

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of the clinic at UPMC Children’s Hospital of Pittsburgh. Rachel Schrader, MS, APRN, CPNP-PC,…

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PPMD Announces Pediatric Certified Duchenne Care Center at St. Louis Children’s Hospital

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of the clinic at St. Louis Children’s Hospital (Children’s). This is an exciting step for…

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PPMD Submits RUSP Nomination Package for Duchenne Muscular Dystrophy

PPMD’s Duchenne Newborn Screening efforts have reached an incredible milestone. Today, PPMD submitted a nomination package to add Duchenne to the Recommended Uniform Screening Panel (RUSP), requesting Duchenne be a condition recommended for nationwide Newborn…

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PPMD Announces 30th Certified Duchenne Care Center at Helen DeVos Children’s Hospital

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with pediatric CDCC certification of the clinic at Spectrum Health Helen DeVos Children’s Hospital (HDVCH) in Grand Rapids,…

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PPMD Brings Caregivers Together to Kick off The Power of Us Summit Series

PPMD Brings Caregivers Together to Kick off The Power of Us Summit Series Today PPMD is excited to convene the first meeting in The Power of Us Summit Series, our series of mental wellness retreats…

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The Heart is a Muscle Too: Developing an Action Plan for Cardiac Care

Someone says, “wait and see,” while someone else says, “start medication early.” Someone recommends cardiac MRI, while someone else suggests, “echo is probably fine.” All the while, new technology abounds, new drugs come to market,…

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The Power of Us Summit Series: Sibling & Teen/Adult Registration Now Open

The Power of Us is stronger than any of us alone. Over the past two years we have found ourselves stronger as a family unit in many ways. However, we have also come to realize…

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Carrier Care: Driving Improvements & Breaking Down Barriers

“Are you a carrier?,” they write in the hushed tones of private groups on social media, attaching anxious face and blue heart emojis in our new lexicon of connection and permission to express. What they…

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PPMD Announces Pediatric Certified Duchenne Care Center at Monroe Carell Jr. Children’s Hospital at Vanderbilt

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the certification of the clinic at Monroe Carell Jr. Children’s Hospital at Vanderbilt in Nashville, Tennessee….

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