February 17, 2023

PPMD Announces Pediatric Certified Duchenne Care Center at Phoenix Children’s

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of the clinic Phoenix Children’s, one of the nation’s fastest-growing pediatric healthcare systems. This addition…

Learn More

February 10, 2023

Update on PPMD’s Newborn Screening Efforts: ACHDNC Advises Additional Information Needed

With a robust therapeutic pipeline, regulatory infrastructure, and clinical care network and guidelines in place, PPMD has been building the infrastructure and preparing for the implementation of newborn screening for Duchenne for almost a decade….

Learn More

February 10, 2023

Update on PPMD’s Newborn Screening Efforts: ACHDNC Advises Additional Information Needed

With a robust therapeutic pipeline, regulatory infrastructure, and clinical care network and guidelines in place, PPMD has been building the infrastructure and preparing for the implementation of newborn screening for Duchenne for almost a decade….

Learn More

December 21, 2022

WATCH: Protect Your Lungs This Winter (Webinar Recording)

Connect With the Experts – Pulmonary Management in Winter Season As we embark into the winter season, it’s imperative that individuals with Duchenne and Becker muscular dystrophy are prepared to manage their pulmonary health and…

Learn More

November 15, 2022

Expert Care in an Emergency: Important Contact Information & Resources

RSV, Flu, & COVID-19. Injuries and illnesses are often unexpected and can lead to visits to the hospital, especially during the winter season. Medical emergencies can happen anywhere, and you may find yourself far from…

Learn More

November 10, 2022

PPMD Announces Pediatric Certified Duchenne Care Center at Riley Children’s Health

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of the clinic at Riley Children’s Health (Riley Children’s), part of the Indiana University…

Learn More

October 20, 2022

WATCH: Connect With the Experts – Genitourinary Health (Webinar Recording)

PPMD recently hosted a webinar on genitourinary (GU) concerns (or the reproductive organs and the urinary system health) for individuals with Duchenne. Rachel Schrader, VP of Clinical Care and Education, spoke with a panel of…

Learn More

October 20, 2022

Save the Date for PPMD’s 2023 Educational Events!

PPMD is excited to announce our 2023 schedule of educational events, including PPMD’s Annual Conference, End Duchenne Tour, and Advocacy Conference. Featuring a variety of in-person and hybrid events, we look forward to bringing our community together to…

Learn More

October 11, 2022

PPMD Announces Pediatric Certified Duchenne Care Center at Stony Brook Children’s Hospital

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of Stony Brook Children’s Hospital, in Stony Brook, New York. This is an exciting…

Learn More

October 5, 2022

WATCH: Psychosocial Considerations for Women in Duchenne (Webinar Recording)

While we often think of the physical aspects of Duchenne and Becker muscular dystrophy, we don’t often talk about the emotional effect it has—especially for caregivers. As part of World Duchenne Awareness Day’s emphasis on…

Learn More