October 20, 2022

WATCH: Connect With the Experts – Genitourinary Health (Webinar Recording)

PPMD recently hosted a webinar on genitourinary (GU) concerns (or the reproductive organs and the urinary system health) for individuals with Duchenne. Rachel Schrader, VP of Clinical Care and Education, spoke with a panel of…

Learn More

October 20, 2022

Save the Date for PPMD’s 2023 Educational Events!

PPMD is excited to announce our 2023 schedule of educational events, including PPMD’s Annual Conference, End Duchenne Tour, and Advocacy Conference. Featuring a variety of in-person and hybrid events, we look forward to bringing our community together to…

Learn More

October 11, 2022

PPMD Announces Pediatric Certified Duchenne Care Center at Stony Brook Children’s Hospital

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of Stony Brook Children’s Hospital, in Stony Brook, New York. This is an exciting…

Learn More

October 5, 2022

WATCH: Psychosocial Considerations for Women in Duchenne (Webinar Recording)

While we often think of the physical aspects of Duchenne and Becker muscular dystrophy, we don’t often talk about the emotional effect it has—especially for caregivers. As part of World Duchenne Awareness Day’s emphasis on…

Learn More

September 23, 2022

2022/2023 Flu Season & Duchenne: Prevention, Identifying Symptoms, and More

As another school year starts, so does preparation for the 2022-2023 flu season. While COVID-19 continues to present in our communities, flu season is upon us and we don’t want to forget to protect ourselves…

Learn More

September 21, 2022

WATCH: Medical Management of Women & Carriers (Webinar Recording)

WATCH: Medical Management of Women & Carriers (Webinar Recording) As part of World Duchenne Awareness Day’s emphasis on Women in Duchenne, PPMD recently hosted a webinar titled, The Medical Management of Women Carriers of Duchenne….

Learn More

August 16, 2022

Eliminating the Diagnostic Odyssey: PPMD Studies Published Featuring Family & Care Provider Perspectives

PPMD has long supported efforts to reduce the age of diagnosis, eliminate the diagnostic odyssey, and make diagnosis equitable in Duchenne. Most recently, we reached an incredible milestone with the submission of a nomination package…

Learn More

August 16, 2022

2022 #PPMDConference Presentations

2022 PPMD Annual Conference Presentations JUNE 23-26, 2022 | Scottsdale, AZ Thank you to everyone who joined us for PPMD’s 2022 Annual Conference, whether you attended in person in Scottsdale, AZ, or virtually from anywhere…

Learn More

August 5, 2022

WATCH: Connect with the Experts – Pain Management (August 2022)

Many people with Duchenne experience pain every day that is often left untreated, or undertreated. Understanding the types of pain, what medications can be safely given, alternative measures of pain relief, and how to discuss…

Learn More

August 4, 2022

PPMD Announces Pediatric Certified Duchenne Care Center at Billings Clinic

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of the Billings Clinic in Billings, Montana. This is an exciting addition to the…

Learn More