2018 Duchenne Clinician Conference Presentations
PPMD’s Duchenne Clinician Conference is designed for healthcare professionals and clinical researchers. Our 2018 conference centered around: 1) presenting best practices in care and treatment of patients with Duchenne muscular dystrophy; 2) providing updates on the most promising near and long term cutting-edge therapies; and 3) creating networks of interprofessional colleagues for continued support and work in the field, which is vital to advances in treatment and care of Duchenne, and contributes to the ‘hub and spoke’ model of care.
Agenda topics and presentations from this conference may be found below.
- Overview of Duchenne and Comprehensive Duchenne Care
Kathi Kinnett, MSN, APRN
Download PDF - The Importance of Genetics in Duchenne
Lee Sweeney, PhD
Download PDF - Care Coordination: An Advanced Practice Perspective
Alison Ballard, RN, CPNP
Download PDF - New (and Old) Corticosteroid News
Anne Connolly, MD
Download PDF - Corticosteroids and an Overview of Neuromuscular Care
Edward C. Smith, MD
Download PDF - Efforts in Newborn Screening
Annie Kennedy
Download PDF - Pulmonary Testing for the Duchenne Muscular Dystrophy Population
Jane B. Taylor, MD, MSCR, FAAP
Download PDF - Bone Health and Duchenne Muscular Dystrophy
Sara DiVall, MD
Download PDF - Management of GI Issues in Duchenne
Kent C. Wiliams, MD
Download PDF - The Heart is a Muscle Too! The Cardiomyopathy in Duchenne Muscular Dystrophy
Linda Cripe, MD
Download PDF - Psychology of Duchenne: Learning Behavior Muscle and Brain
Jos Henricksen, PhD
Download PDF - Evaluating Learning and Obtaining Educational Resources
Jill Castle, Med
Download PDF - New ICD Codes for Duchenne/Becker Muscular Dystrophy
Annie Kennedy
Download PDF - Caring for a Multi-Lingual Population: Challenges and Resources
Emmanuelle Tiongson, MD and Ashley Niederhauser, LCSW
Download PDFs: Part 1 and Part 2 - Dental and Swallowing Issues
Elizabeth Vroom, DDS
Download PDF - Puberty and Growth in Duchenne Muscular Dystrophy
Sara DiVall, MD
Download PDF - Nutrition & Supplements in Duchenne Muscular Dystrophy
Davi Mazala, PhD
Download PDF - Psychosocial and Mental Health Care
Mary K. Colvin, PhD, ABPP
Download PDF - Lifelong Occupational Therapy Needs
Heather Simpson, MOT, OTR/L
Download PDF - PPMD Resource Section
Ryan Fischer
Download PDF - Lifelong Physical Therapy Needs
Claudia Senesac, PT, PhD, PCS
Download PDF - Planning for Transition to Adult Care & Living
Christina Trout, MSN, RN
Download PDF - The Duchenne Registry
Ann Martin, CGC
Download PDF - Adult Care Model
Kim Marben, DNP, MSN, RN, CPN
Download PDF - Caring for Duchenne Carriers
Rachel Schreader, MS, RN, CPNP-PC
Download PDF - Characterization of Clinical Skeletal and Cardiac Impairment in Carriers of DMD and BMD
Eric Camino, PhD
Download PDF - Palliative Care: When Should the Palliative Care Team Be Included in the Neuromuscular Team?
Vanessa Batista, RN, MS, CPNP
Download PDF - Emergency Care and Resources
Kathi Kinnett, MSN, APRN
Download PDF - New Developments and Novel Therapies
Lee Sweeney, PhD
Download PDF - Clinical Trial Decision Making: Helping Families Navigate the Current Clinical Trial Landscape
Edward C. Smith, MD and Ann Martin, CGC
Download PDFs: Part 1 and Part 2
