For Adults / Young Adults
PPMD’s Adult Advisory Committee (PAAC) amplifies the teen and adult voices of Duchenne, Becker, and carriers as an extension of Parent Project Muscular Dystrophy (PPMD). The PAAC takes a holistic approach to advocacy by addressing care, community, and quality of life. We work together to elevate the lives of individuals living with Duchenne and Becker through mentorship, outreach, and education.
What We Do
- Hold monthly meetings to discuss concerns, interests, and strategic initiatives impacting the Duchenne community.
- Communicate with members of Congress and their staffers about disability legislation.
- Plan and implement Teen and Adult sessions at PPMD’s Annual Conference.
- Hold bi-weekly virtual socials and game nights on the PAAC Discord.
Get Involved
Interested in joining the PAAC or learning more?
- The PAAC is an open and inclusive group. We accept new members in December of each calendar year. To learn more about becoming a member, contact Patrick Moeschen, Director: pmoeschen@parentprojectmd.org.
- The PAAC also welcomes those interested in lending their expertise, skills, or other resources to this group. To find out more or start a conversation about getting involved, contact Patrick Moeschen, Director: pmoeschen@parentprojectmd.org.
Connect with Us on Social
- Join us on the PAAC’s Facebook Group, a safe and inclusive place for those with Duchenne and Becker to discuss topics, issues, and concerns related to the muscular dystrophy experience as well as a place to connect with other individuals.
- We also have a Discord server and Instagram.
For Tweens
PPMD and the PAAC also host several social opportunities for tweens (individuals with Duchenne/Becker as well as carriers ages 9-14), including regular Virtual Socials and a Gaming Discord. Learn more.
PAAC Officer Board
President
Colin Werth
Vice President
Adith Thummalapalli
Secretary
DJ Kimble
Historian
Jake Wesley
