The Duchenne journey is complex, but PPMD is here for you.

Whether you have just received a diagnosis of Duchenne or Becker muscular dystrophy, have questions about genetics and clinical trials, navigating school and IEPs, or planning for independent living, our team is here for you every step of the way.

The PPMD Team is made up of several staff members with expertise in navigating neuromuscular care and services, and we are available to help answer questions you may have.

Click below to schedule a one-to-one meeting with an expert member of the PPMD team for personalized support. We’re here to provide you with resources to help you navigate the concerns and decisions that are part of Duchenne and Becker.

Please note, PPMD is based in the United States, and at this time, our PPMD For You team can only schedule meetings with families within the U.S. However, if you are an international family seeking resources or guidance, please email careteam@parentprojectmd.org and we may still be able to assist.

Remember, you are not alone on this journey. PPMD is here for you.

Don’t see the topic you’re looking for? Email careteam@parentprojectmd.org with more information on how we can best support you. We will get you connected with someone who can provide answers or resources.