Connecting with OR Families
Connect with Oregon Duchenne Families on Facebook through our Connect Program. You will need to request to be add to the group first.
Accessibility & Recreation
Creative
- Magic Wheelchair
Nonprofit organization that builds epic costumes for kiddos in wheelchairs at no cost to families.
https://www.magicwheelchair.org/
Education
Advocacy Agencies
- Disability Rights Oregon
511 SW 10th Avenue, Suite 200
Portland, OR 97205
503-243-2081
503-323-9161 TTY
800-452-1694
Website
Email
Department of Education
- Office of Special Education
Department of Education
Nancy J. Latini, Ph.D., Associate Superintendent
255 Capitol Street N.E.
Salem, OR 97310-0203
503-378-3600 EXT 2361
503-378-2892 (TTY)
503-378-5156 FAX
Website
E-Mail: ode.frontdesk@ode.state.or.us
Early Intervention Services (Infant and toddler)
- Early Intervention/Early Childhood Special Education Department
Office of Special Education
Diana Allen, Director
255 Capitol Street N.E.
Salem, OR 97310-0203
503-378-3600, ext. 2338
503-373-7968 FAX
Website and contact information
Early Intervention Services (Ages 3 to 5)
- Early Intervention/Early Childhood Special Education Department
Office of Special Education
Diana Allen, Director
255 Capitol Street N.E.
Salem, OR 97310-0203
503-378-3600, ext. 2338
503-373-7968 FAX
Website and contact information
PTI (Parent Training and Information Centers)
- Family and Community Together (FACT)
13455 SE 97th Ave
Clackamas, OR 97015
503-786-6082
503-786-6084 FAX
888-988-3228
Website
E-Mail: info@factoregon.org
Health & Well-Being
- Oregon Health Plan Programs
This program provides Medicaid health insurance to eligible children under age 19 based on family income.
Healthy Kids information
Programs online application
- Medicaid Home and Community Based Waivers for People with Physical Disabilities
The Aged and Disabled Waiver provides supports and services to eligible people with disabilities age 18 and older allowing them to remain at home and in the community. The Medically Involved Children’s Waiver provides supports and services to eligible children under age 19. Individuals in both programs must meet Nursing Facility Level of Care criteria and financial requirements. Appropriate services vary based on individual program and need.
Aged and Disabled Waiver information
Medically Involved Children’s Waiver information - Oregon Health Insurance Payment Program (HIPP)
HIPP is a reimbursement program that is available to individuals covered by private insurance and Oregon Health Plan (Medicaid). HIPP helps policy holders pay the premiums for their third party insurance (TPL).
Website and contact information
Financial Support
- Wheel to Walk Foundation
The Wheel to Walk Foundation is a non-profit organization that helps children with disabilities, 20 years and younger, obtain medical equipment or services not provided by insurance.
Website