Connecting with NC Families
Connect with North Carolina Duchenne Families on Facebook through our Connect Program. You will need to request to be add to the group first.
Accessibility & Recreation
Creative
- Kangaroo Kids
Receive a “pouch” which is a one stop medical notebook to keep track of important details
https://www.kangarookidsclt.org/
Recreation
- Bridge II Sports
Bridge II Sports is a non-profit, 501(c)(3) organization. Bridge II Sports mission is to create opportunities for children and adults who are physically challenged to play team and individual sports by providing equipment, developing sports, teams and coaching, thereby helping them to discover tenacity, confidence, self-esteem, and the joy of finding the player within.
Bridge II Sports Website
Education
Advocacy Agencies
- Disability Rights NC
2626 Glenwood Ave., Suite 550
Raleigh, NC 27608
919-816-2195
919-856-2244 FAX
877-235-4210
Website
E-Mail: info@.disabilityrightsnc.org
Department of Education
- Exceptional Children Division
North Carolina Department of Public Instruction
Mary Watson, Director
301 N. Wilmington St.
Raleigh, NC 27601
Phone: 919-807-3300
Website
Contact information
Early Intervention Services (Infant and toddler)
- North Carolina Infant-Toddler Program
Division of MH, DD & Substance Abuse Services
Department of Human Resources
1916 Mail Service Center, Raleigh
NC 27699-1916
919-707-5520
919-870-4834 FAX
Website
Contact Information
Early Intervention Services (Ages 3 to 5)
- Exceptional Children Division
301 N Wilmington St, Education Bldg., #570
919-715-1565
919-807-3998 FAX
Website
Contact information
PTI (Parent Training and Information Centers)
- The Exceptional Children’s Assistance Center
907 Barra Row, Suite 102 & 103
P.O. Box 16
Davidson, NC 28036
704-892-1321
800-962-6817
704-892-5028 FAX
Website
Contact information
Health & Well-Being
- Health Choice for Children, Children’s Health Insurance Program
Effective April 1, 2023, NC Health Choice beneficiaries automatically moved to the Medicaid program. There is no action needed by beneficiaries or providers.
Health Choice for Children provides health insurance to eligible children between ages 6 and 18 who have no health insurance coverage. Eligibility is based on family size and income. Families may be required to pay an enrollment fee and co-pays for services also based on income.
Health Choice for Children information (Now Medicaid)
North Carolina Medicaid Information - Community Alternatives Program for Children (CAP/C)
CAP/C is a Medicaid waiver program for eligible children, birth through age 20, who meet Nursing Facility or Hospital Level of Care criteria. Parent/family income requirements are ‘waived’, meaning not considered, and eligibility is determined by the child’s income. Services are provided to allow a child with significant medical needs to remain at home and in the community. Case managers help families identify appropriate supports including in-home nursing, respite, allowed home and vehicle modifications for accessibility and care giver training.
CAP/C information - Community Alternatives Program for Disabled Adults (CAP/DA)
This Medicaid waiver program provides appropriate supports and services to eligible adults who meeting Nursing Facility Level of Care criteria allowing them to remain at home and in the community. Services include case management, home modifications for accessibility, personal care aid, specialized medical equipment and supplies and respite services, specialized medical equipment and supplies and respite services.
CAP/DA information
Wish Foundations
- Get Stuff Done 4 Kids
GSD4K’s desire is to afford children and their families the opportunity to partake in experiences and adventures that may otherwise have been unavailable or unattainable, due to limited financial resources or other factors.
GSD4K website - Meg’s Smile Foundation
Meg’s Smile Foundation is a 501 c3 charitable organization that provides special days out or gifts to children affected by serious illnesses who are treated in North Carolina hospitals. Our mission is to bring smiles to the faces of these children and their families while they are going through what can be a very long and emotional journey.
Website
