Connect with FL Families

Connect with Florida Duchenne Families on Facebook through our Connect Program.  You will need to request to be added to the group first.

Accessibility & Recreation

  • Shake-A-Leg Miami
    South Florida’s premier adaptive watersports community serving people of all abilities.
    http://www.shakealegmiami.org/
  • Island Dolphin Care
    An organization that provides unique, therapeutic, motivational and educational dolphin assisted therapy programs for children and adults with special needs and their families.
    http://www.islanddolphincare.org/
  • Impossible Dream
    This is an accessible catamaran that travels down the east coast and is free. Check their website to see if they are coming to your town soon.
    Impossible Dream (theimpossibledream.org)
  • Make a Difference Fishing Tournament, Inc.
    This organization dedicated to helping children with disabilities through fishing tournaments and other programs that facilitate involvement in marine education and recreation.  Every angler that attends a tournament receives FREE FISHING GEAR including: a rod and reel, tackle and bait. All anglers and guests are given free food and drinks throughout the day on the day of the event
    http://www.makeadifferencefishing.com/
  • Oceans of Hope Foundation
    Adaptive Surfing and Kayaking
    OceansOfHopeFoundation.org
  • Tiff’s Place
    Fully accessible vacation home for those with neuromuscular disorders.
    Tiff’s Place | Welcome Home (tiffsplace.org)

Education

Advocacy Agencies

  • Disabilities Rights Florida
    2473 Care Drive, Suite 200
    Tallahassee, Florida 32308
    850-488-9071
    800-346-4127 TTY
    800-342-0823
    Website
    Contact
  • Yellow Pages for Kids -Florida Resources
    Provides extensive resources to learn about and navigate special education, including state listings of Parent Training and Information Centers.
    http://www.yellowpagesforkids.com/help/fl.htm

Department of Education 

  • Bureau of Instructional Support and Community Services
    Florida Department of Education
    Bambi J. Lockman, Bureau Chief
    325 W. Gaines Street, Suite 614
    Tallahassee, FL 32399-0400
    850-488-1570
    850-245-0953
    Website
    Contact information

Early Intervention Services (Infant and toddler)

  • Florida Early Steps
    Early Intervention Unit
    State Department of Health
    4052 Bald Cypress Way, BIN A06
    Tallahassee, FL 32399-1707
    800-218-0001
    Website
    E-Mail: floridaearlysteps@flhealth.gov

Early Intervention Services (Ages 3 to 5)

  • Office of Early Intervention & School Readiness
    Division of Public Schools/Department of Education
    250 Marriott Drive
    Tallahassee, FL 32399
    866-357-3239
    Website
    Contact

PTI (Parent Training and Information Centers)

  • Family Network on Disabilities of Florida, Inc.
    2735 Whitney Road
    Clearwater, FL 33760-1610
    727-523-1130
    727-523-8687 FAX
    800-825-5736
    Website
    Contact Information
  • Family Network on Disabilities
    1002 Miccosukee Road
    Tallahassee, FL 32308
    850-980-1103
    800-825-5736
    850-727-0873 FAX
    Website
    E-mail: fnd@fndusa.org

Serving: Dade and Monroe Counties

  • Parent to Parent of Miami, Inc. (CPRC)
    7990 SW 117th Ave, Suite 201
    Miami, FL 33183
    305-271-9797
    305-271-6628 FAX
    800-527-9552
    Website
    E-Mail: info@ptopmiami.org

Health & Well-Being

  • Florida Kid Care children’s health insurance program
    Uninsured children under age 19 may qualify for Kid Care health care based on household size and income limits.  Children who are insured may qualify for other Medicaid insurance.
    Kid Care information
  • Medicaid
    Adults over age 18 who are disabled may qualify for Medicaid based on income and assets.   Florida residents who qualify for Social Security Income are automatically eligible for Medicaid.
    Medicaid information
  • Statewide Medicaid Managed Long Term-Care Program (SMMC LTC)
    This Home and Community Based Services program provides supports and services for adults over 18 who are eligible for Medicaid due to disability and meet Nursing Facility Level of Care criteria.  Services include Home Accessibility Adaptation, Medical Equipment and Supplies, Personal and Attendant Care, Respite Services, and OT, PT and Respiratory Therapy.
    SMMC LTC information
  • Medicaid for the Elderly and People with Disabilities
    Introductory information about long term resources for adults with disabilities.  Includes general information about health care and long-term care and supports.
    Website
    Aging and Disability Resource Center (For assistance with finding and applying for disability programs)
    Contact Information

What Florida-specific resources would you like to add or update? Email resources@parentprojectmd.org