Checklist for the emergency room/hospital
If you are on your way to the hospital or emergency room, you will need to take different information, depending on the reason for your visit. Each topic below has its own checklist.
- Breathing problems
- Broken or suspected bone / Fall / Trauma
- Dental procedures
- Pain
- Surgery
- Vomiting and/or unable to take daily corticosteroids for 24 Hours
Breathing problems
If you/your child is having problems with breathing (shortness of breath, difficulty breathing, etc.), take the following pieces of information with you:
- Emergency card
- Copy of last neuromuscular note (download)
- Phone number for your neuromuscular team
- Call and let them know that you are on your way to the emergency room/hospital and why
- Anesthesia recommendations
- Duchenne extubation protocol
- Oxygen precautions/recommendations
- Fat Embolism Syndrome information
- Take any breathing equipment that you use at home (cough assist, BiPAP, CPAP, etc.) with you
- Take any medications that you take at home with you
Broken or suspected broken bone/fall/trauma
If you suspect that you/your child may have broken a bone or has has a fall/trauma, take the following pieces of information with you:
- Emergency card
- Copy of last neuromuscular note (download)
- Phone number for your neuromuscular team
- Call and let them know that you are on your way to the emergency room/hospital and why
- Anesthesia recommendations
- Duchenne extubation protocol
- Oxygen precautions/recommendations
- Fat Embolism Syndrome information
- Take any breathing equipment that you use at home (cough assist, BiPAP, CPAP, etc.) with you
- Take any medications that you take at home with you
- Information regarding managing broken bones in Duchenne
Dental procedures
If you/your child is having a dental procedure, take the following pieces of information with you:
- Copy of last neuromuscular note (download)
- Anesthesia recommendations
- Take any medications that you take at home with you
Pain
If you/your child is having severe pain, take the following pieces of information with you:
- PPMD Pain Chart
- Emergency card
- Copy of last neuromuscular note (download)
- Phone number for your neuromuscular team
- Call and let them know that you are on your way to the emergency room/hospital and why
- Anesthesia recommendations
- Duchenne extubation protocol
- Oxygen precautions/recommendations
- Fat Embolism Syndrome information
- Take any breathing equipment that you use at home (cough assist, BiPAP, CPAP, etc.) with you
- Take any medications that you take at home with you
- Information regarding managing broken bones in Duchenne
Surgery
If you/your child is scheduled for surgery, or having emergency surgery, take the following pieces of information with you:
- Copy of last neuromuscular note (download)
- Phone number for your neuromuscular team
- Call and let them know that you are having surgery if they are not aware
- Anesthesia recommendations
- Schedule a time to speak with the anesthesia team before the surgery if possible
- Duchenne extubation protocol
- Oxygen precautions/recommendations
- Fat Embolism Syndrome information
- Take any breathing equipment that you use at home (cough assist, BiPAP, CPAP, etc.) with you
- Take any medications that you take at home with you
- Information regarding managing broken bones in Duchenne
Vomiting and/or unable to take daily corticosteroids for 24 Hours
If you/your child is vomiting and/or unable to take daily corticosteroids for 24 hours, take the following pieces of information with you:
- Emergency card
- Copy of last neuromuscular note (download)
- Phone number for your neuromuscular team
- Call and let them know that you are on your way to the emergency room/hospital and why
- Anesthesia recommendations
- PJ Nicholoff steroid protocol
- Duchenne extubation protocol
- Oxygen precautions/recommendations
- Fat Embolism Syndrome information
- Take any breathing equipment that you use at home (cough assist, BiPAP, CPAP, etc.) with you
- Take any medications that you take at home with you