There are currently two programs providing direct assistance to Duchenne families during the COVID-19 pandemic to help with costs for day-to-day expenses. Please be sure to check them out and let others in the community know about them.

Please also remember to visit PPMD’s COVID-19 resource section for additional information to help you and your family navigate this global crisis, including answers to your most pressing questions to fun family activities to help you get through long days (and nights) at home.

Duchenne Family Assistance Program – Corona Relief Fund

Whether you’re struggling with job loss, worried about getting groceries while maintaining social distancing, figuring out how to keep your kids busy, or all of the above, these are extraordinary times that we are all doing our best to navigate. That’s why the Duchenne Family Assistance Program launched the Coronavirus Relief Fund for Duchenne families.  Mini-grants (between $250 or $500) are available for groceries (including delivery fees!), utilities, or any other emergency needs you’re struggling with. Let the Duchenne Family Assistance Program know how you plan to use the funds and if there are other ways you need help.

$100 mini-grants (per child) are available for fun or educational materials for your child(ren) with Duchenne and their siblings.  All you have to do is select the number of kids in your Duchenne household, and then start planning some fun…puzzles, games, a new hobby, music, or whatever works for your child(ren)!

Learn more

As soon as they receive your application, their team will be in touch!

NORD COVID-19 Critical Relief Program

Through a new program, the National Organization for Rare Disorders (NORD) will provide financial assistance to eligible patients, covering up to $1,000 annually. It provides funds for essential expenses including, but not limited to, unexpected utility expenses; cellular or internet service; emergency repairs to car, home, or major appliances; and rent or mortgage payment assistance. Interested rare disease patients and families can reach out to NORD to find out if they meet eligibility requirements.

For more information on the NORD COVID-19 Critical Relief Program and to apply, please contact NORD by telephone at 203.242.0497, via email at COVID19assistance@rarediseases.org, or visit rarediseases.org.

Contact NORD