July 9, 2019 /

Addressing the Complexities of Duchenne (PPMD 2019 Conference)

Addressing the Complexities of Duchenne (PPMD 2019 Conference)

Addressing the Complexities of Duchenne – What You Should Know
Moderator: Anessa Fehsenfeld

  • 0:10 – Attacking Duchenne from Every Angle – Anessa Fehsenfeld, PPMD Chairman
  • 3:40 – Duchenne Research and Clinical Trials – Abby Bronson
    • Current therapeutic approaches and clinical trials
    • Strategies to accelerate the process
  • 4:00 – Working to Facilitate a Favorable Access Environment – Annie Kennedy
    • Influencing policy and infrastructure that drives Duchenne research, treatments, and access
    • Producing evidence to reflect the Duchenne community’s experience to inform decision-making by all stakeholders within the access ecosystem
  • 4:15 – Improvements in Care: Extending Quality of Life with a Focus on the Future – Kathi Kinnett
    • The Certified Duchenne Care Center network accomplishments
    • Integrating clinics, industry, and The Duchenne Registry to build a solid network
  • 4:30 – The Patient Voice: Your Data Informing the Drug Development Ecosystem – Ryan Fischer
    • Your preferences and participation drives innovation and change
    • The Duchenne Registry and The Duchenne Outcomes Research Interchange
  • 4:55p – POLLING QUESTIONS

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