Agenda & Topics
What can I expect at PPMD’s 2020 Virtual Annual Conference?
The 2020 PPMD Virtual Annual Conference will feature presentations on:
- Gene therapy
- Current clinical trials
- Important care topics
- Quality of life issues
- Cardiac implications in Duchenne
- Carrier health information
- Preclinical research discussions
- And a look ahead at promising research strategies and other ways to move the Duchenne landscape, even in the midst of the ongoing health crisis.
In addition to conference presentations, panel discussions, and Q&A sessions, PPMD’s 2020 Virtual Annual Conference will include:
- Dedicated sessions, both social and educational, for newly diagnosed families
- Dedicated sessions for teens and adults living with Duchenne
- The ability to schedule one on one sessions with:
- Certified Genetic Counselors from The Duchenne Registry
- A Child Behavioral Educational Specialist
- Physical Therapists
- Other experts throughout the conference
- A robust online poster session providing information on research related to Duchenne
- Social activities for moms, dads, grandparents, siblings, and, of course, teens and adults
- A morning yoga class open to all
- And interactive trivia sessions to help keep us all on our toes while having a little fun.
When are the Conference Sessions?
View a snapshot of our agenda below to give you a sense of when the days will begin and end, and some of the sessions we are planning. A detailed agenda will be provided in the coming weeks.
Wednesday, July 22 | 6:00 PM - 8:00 PM EDT
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Thursday, July 23 | 1:00 PM EDT Lunch ‘n Learn 6:00-8:00 PM EDT
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Friday, July 24 | 1:00 PM EDT Lunch ‘n Learn 3:00-6:25 PM EDT
7:00 - 8: 30 PM EDT
8:45 PM EDT Social Hangout events for Moms, Dads, Grandparents and of course teens and young adults. |
Saturday, July 25 | 9:00 AM EDT Yoga 10:30 AM -12:10 PM EDT
12:10-1:00 PM EDT Lunch 1:00-2:00 PM EDT Keynote Speaker 2:00-6:15 PM EDT
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