On Wednesday, March 4, 2020, Santhera Pharmaceuticals joined PPMD for a webinar to discuss teen and young adult clinical trial participation.
We heard from Santhera about lessons learned by conducting one of the largest trials in Duchenne. PPMD Adult Advisory Committee members and trial participants Colin Werth and Austin LeClair also joined us for an open discussion about their experiences. Hear why they choose to participate in trials, how they make trial participation possible with their daily lives, and guidance to other teens and young adults considering trial participation.
Moderators
- Rachel Schrader MS, APRN, CPNP-PC
Senior Vice President, Clinical Care – PPMD - Amanda Wilkison, RN, BSN
Manager, Clinical Care – PPMD
Presenters
- Jodi Wolff, PhD, MSSW
Head of Patient Advocacy – U.S., Santhera Pharmaceuticals - Colin Werth
PPMD Adult Advisory Committee - Austin LeClair
PPMD Adult Advisory Committee
Watch the Recording