PPMD’s 2020 Annual Conference
THURSDAY, JUNE 25 – SATURDAY EVENING, JUNE 27
SCOTTSDALE, AZ
The 2020 PPMD Annual Conference marks our 26th Annual Conference. No other Duchenne conference comes close to the experience that the PPMD Annual Conference is. Families, physicians, researchers, caregivers, industry partners and those living with Duchenne gather to discuss all topics Duchenne. They gather to connect, to share information, and to discuss and debate the opportunities for Duchenne treatments.
This conference is like no other. Here the key is community. All pieces of this incredible community come together to learn, to listen and to look forward at driving change. Every single voice is important, and every moment is rich. Now is the time for us to come together as a community, and seize this moment.
The field is ripe with opportunity and at the PPMD Annual Conference partnerships are built, questions are asked and answered, and friendships are forged.
Register as a Family Member Register as a Professional Apply for Newly Diagnosed ScholarshipPPMD’s Annual Conference & the coronavirus
At this time, we are hopeful that the coronavirus will be contained by this year’s conference at the end of June, but we will keep you updated on any changes to our plans. We recommend that you register for the Conference and explore booking your travel needs to ensure your space is reserved. If the situation changes, all PPMD registration fees will be fully refundable. Hotel reservations within the PPMD hotel room blocks can be cancelled up to 7 days prior to the arrival date to receive a refund of the deposit. Many airlines are also offering deals for newly booked flights, where changes or cancellations can be made within a specific timeline (please look at each airline policy closely to see what applies for you). Click here for additional information on coronavirus recommendations.
Details
- When: Thursday, June 25 – Saturday evening, June 27, 2020
- General Sessions will begin at 1pm Thursday, June 25.
- Newly Diagnosed Program Sessions will begin Wednesday, June 24 at 4pm.
- Teens & Adults Track Social will be held the evening of Wednesday, June 24.
- Connect with families and enjoy some downtime at our Celebration Dinner on Friday evening, June 26.
- Enjoy a poolside movie & snacks at our Dive-In Movie Dinner Party, after the final sessions on Saturday, June 27.
- Where: Scottsdale, AZ at The Phoenician
- PPMD has retained a discounted room rate for our Annual Conference. Hotel rooms in this block are on a first come, first serve basis. The DEADLINE to make your reservation is June 2, 2020. See “Room Reservations” section at bottom of page for more info
- Early Registration Deadline: April 15
- General Registration Deadline: May 15
- Late/Final Registration Deadline: June 25
This year in Scottsdale, AZ you will hear current and critical information on:
- Managing all aspects of care in Duchenne
- Understanding Duchenne mutations and disease course
- Duchenne clinical trials, both ongoing and upcoming, the advancements and the timelines
- Gene Therapy and where this research is heading
- Accessing therapies and the future of treatments
- Impacting research, trials, and treatment through advocacy and collaboration
- Encouraging independence and social integration
- Parent to parent real life information – managing your family
- Managing Behavior issues and anxiety in Duchenne
- Living with Duchenne – those living with Duchenne spend time with and learn from our PPMD Adult Advisory Committee about everyday life
PPMD’s 2020 Annual Conference will have more small and topic specific breakout sessions and of course one on one private sessions, a part of the 2019 Annual Conference that was highly acclaimed and requested again.
Conference Registration Rates
Rates For Families
| Guest Type | Early March 1 - April 15 | General April 16 - May 15 | Late May 16 - June 25 |
|---|---|---|---|
| General Conference - Per Person (Family Members, Patients, Family Foundations) | $150 | $200 | $250 |
| Teens & Adults Track Programming & Social Events (individuals with Duchenne/Becker only; ages 14 and up) | $100 | $150 | $175 |
| Kids Track (all children ages 5-13) | $40 | $45 | $45 |
| Scholarships for Newly Diagnosed Families | PPMD offers a scholarship program to waive registration fees for families who have been diagnosed after January 2018.* Please click here to apply for this scholarship. *PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations or Kids Track. |
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Families who have financial barriers to covering the registration fees for conference, please contact Ryan@parentprojectmd.org
Register as a Family Member Apply for Newly Diagnosed ScholarshipDuchenne Family Assistance Program Conference Hotel & Travel Scholarship
PPMD is once again partnering with the Duchenne Family Assistance Program to help cover cost for families who have financial barriers to attending the PPMD Annual Conference. Duchenne Family Assistance Program covers hotel and flight for families in need and PPMD waives the cost of registration. For more information, please contact dorene@teamjoseph.org to learn more about the program.
Rates For Professionals
| Guest Type | Early March 1 - April 15 | General April 16 - May 15 | Late May 16 - June 25 |
|---|---|---|---|
| Industry Representatives (Sponsoring) | $550 | $650 | $700 |
| Industry Representatives (Non-Sponsoring) and Other Professionals | $750 | $850 | $900 |
| Academic Health Care Professionals (MD, PhD, PT, NP, etc - Not employed by Pharma Industry) | $325 | $350 | $425 |
What does your Annual Conference Registration Cover?
Registration fees help to offset, but do not cover the full cost of the Annual Conference. PPMD recognizes, however, that bringing the conference and the wealth of information it provides is an invaluable part of our leadership in the Duchenne community.
Included with your registration fee is:
- Access to all General Information Sessions
- Access to all Breakout Sessions
- Specialized programing if applicable (Newly Diagnosed Sessions, Teen & Adult Track Sessions)
- Conference materials and information including a printed conference guide that compiles the latest information on all current Duchenne clinical trials
- Vendor Resource Fair and Scientific Poster sessions
- Breakfast, lunch, and a welcome reception on Thursday, June 25
- Breakfast, lunch, and dinner on Friday, June 26
- Breakfast, lunch, and light dinner on Saturday, June 27
- Various coffee breaks on each meeting day and other hospitality events
Newly Diagnosed Program
PPMD will again be offering a support program for newly diagnosed Duchenne families to attend the Annual Conference. Through generous donations and sponsorships, PPMD will waive registration fees for families who have been diagnosed after January 2018.*
If your child has been diagnosed with Duchenne after January 2018 and you have never attended a PPMD Annual Conference, this is your opportunity. Gain a better understanding of Duchenne care and research, and meet other families living with this diagnosis. Please apply for this scholarship to waive your conference registration fees.
*PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track is not included in this sponsorship.
Teens & Adults Track
This programming is for participants with Duchenne or Becker muscular dystrophy, ages 14 and up only.
PPMD formally introduced specific programing for Teen and Adults living with Duchenne at the 2016 Annual Conference. Since then, the desire for more of this programing to include social events as well as closed door care and life management sessions has helped to drive a robust Teen and Adult track at the meeting. At the 2020 PPMD Annual Conference, we will be offering a Teen and Adult Social on Wednesday evening, June 24 (the night before the Conference officially begins), plus relevant general presentations and special closed door sessions throughout the conference. The teen and adult programing is designed for those age 14 and up only.
Kids Track
This programming is for all children ages 5-13.
PPMD’s Annual Conference is a busy 3-day meeting, which can be hard for little ones to handle. One way PPMD tries to help is to provide a few hours each day of Kids Track programing so that parents can have a small break. While Kids Track is not an all-day child care service, it is a nice way for the children to meet each other, interact, and have some fun!
This year, the program will include:
- A two hour session Thursday, June 25 with special guest entertainment.
- A three hour session and lunch the morning of Friday, June 26 which will feature games and crafts.
- A two and a half hour session the afternoon of Saturday, June 27 where we watch a favorite movie and have Lego and craft time.
Room Reservations
PPMD has retained a discounted room rate for our Annual Conference at The Phoenician in Scottsdale, AZ.
- Location: The Phoenician, 6000 East Camelback Road, Scottsdale, AZ 85251
- Deadline: Hotel rooms in this block are on a first come, first serve basis. The DEADLINE to make your reservation is June 2, 2020.
- Rate: The group rate is $190 per night, single or double occupancy.
- A one-time Porterage gratuity charge of $14.00 total, per person check-in and check-out will be charged to the individual’s folios is paid in its entirety to employees providing the porterage services. An additional charge of $5.00 per room plus tax, per night added for Housekeeping service fee. Overnight valet parking is available at $33.00 per night plus tax. Overnight self-parking is available at $18.00 per night, plus tax.
- Book: Click here to book online.
Duchenne Family Assistance Program Conference Hotel & Travel Scholarship
PPMD is once again partnering with the Duchenne Family Assistance Program to help cover cost for families who have financial barriers to attending the PPMD Annual Conference. Duchenne Family Assistance Program covers hotel and flight for families in need and PPMD waives the cost of registration. For more information, please contact dorene@teamjoseph.org to learn more about the program.
Corporate Sponsorship Opportunities
Interested in sponsoring the Annual Conference? Sponsorship opportunities are still available. Please visit our Sponsor Programs page for more details.
Resource Fair Opportunities
We are pleased to announce the return of the PPMD Resource Fair at this year’s Annual Conference. We are working to help resource providers and the community connect about practical services, equipment, and more. 1-Day Admission for attendees is included in registration. If you would like information about how to exhibit please visit our Resource Providers page for more details.
Call for Poster Session Abstracts
PPMD is excited to one again include a Poster Session at this year’s Annual Conference. The Poster Session will take place Thursday June 25, 2020 (6:30 PM – 9:30 PM) and, as in the past, promises to be an interactive, engaging, and social networking event designed to bring together researchers and the community face to face. If you are interested in submitting an abstract please visit our Poster Session Submission page for more details. Submissions are due May 8th.
Questions?
Contact info@parentprojectmd.org if you have questions about PPMD’s Annual Conference.
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