Community & Corporate Resources

PPMD is proud to collaborate with every organization and company in the Duchenne space. We respect the work that these partners are doing and hope that if there is anything you are unable to find within the PPMD website, you will check out some of these other resources:

Community Resources

While there are dozens of Duchenne-specific organizations in our community, the organizations below provide specific services that may be useful to you and your family.

Coming Soon

Corporate Resources

Many companies provide educational resources to patients regardless of whether or not the patient qualifies for their product or is participating in one of their trials. Below is a list of these resources.

Capricor

www.capricor.com

NS Pharma

https://www.nspharma.com/pipeline

https://www.viltepso.com/support

https://www.wespeakduchenne.com

PTC

www.duchenneandyou.com/

www.PTCCares.com

Sarepta

www.duchenne.com

Solid

www.solidbio.com

www.solidbio.com/education/genetherapyeducation.com

While Parent Project Muscular Dystrophy (PPMD) strives to make the information on this website as timely and accurate as possible, PPMD makes no claims, promises, or guarantees about the accuracy, completeness, or adequacy of the contents of this site, and expressly disclaims liability for errors and omissions in the contents of this site. Reference in this site does not constitute endorsement or recommendation by PPMD. Click here to review PPMD’s policy on corporate support.