Been looking for a way to engage with the community a bit more? Have a personal experience that you would like to share with the larger community or federal and state advocacy efforts? Interested in serving as a mentor to others with Duchenne or Becker?

PPMD is seeking adult members of our Duchenne and Becker community to serve on the 2022 PPMD Adult Advisory Committee (PAAC).

Please consider lending your time, talent, and vision to paving our pathway forward.

About the PPMD Adult Advisory Committee

The PPMD Adult Advisory Committee (PAAC) is on a mission to elevate the lives of individuals living with Duchenne and Becker muscular dystrophy through advocacy, education, mentorship, and awareness. We represent the teen and adult voice of people living with Duchenne and Becker as an extension of Parent Project Muscular Dystrophy (PPMD).

PPMD Adult Advisory Committee (PAAC) Member Requirements

To be eligible to serve on the PAAC, members must be age 18 or older at the time of application and diagnosed with either Duchenne or Becker muscular dystrophy. All PAAC members are required to participate in monthly Committee Zoom Meetings. In-person meetings are occasionally held in conjunction with PPMD’s Annual Advocacy Conference in Washington, DC and PPMD’s Annual Conference each June; meeting attendance by PAAC members is strongly encouraged but not required for membership.

The time commitment for PAAC members is roughly 5 hours/month.

To Apply for PAAC Membership Consideration

1. Complete and submit the 2022 PAAC Membership Application
2. Submit your resume through the google form above, or email it to pmoeschen@parentprojectmd.org

Both the 2022 PAAC Membership Application and resume submission must be completed by Monday, November 29 for your membership to be considered. Please note that inexperience will not disqualify your application.

Apply Here >