2025 Newly Diagnosed Families Program Application

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Once again, PPMD will be offering a support program for newly diagnosed Duchenne families to attend our Annual Conference, which takes place June 19-21, 2025 in Las Vegas, NV. This program is open to families who have received a Duchenne/Becker diagnosis after January 2021 and have never attended a PPMD Annual Conference before*.

Applicant Requirements (You must meet ALL requirements to be eligible)

1. Family must have received the diagnosis of Duchenne after January 2021.
2. Family has never attended the PPMD Annual Conference.
3. Family must be registered in the The Duchenne Registry (http://DuchenneRegistry.org) - profiles need to be complete.
4. Limited to two adults from each family.
5. Family must cover all other expenses, to include but not limited to: airfare, airport transfers, hotel accommodations.

For questions, or if you are attending PPMD's Annual Conference as a virtual attendee and are interested in additional resources for newly diagnosed families, please contact nicole@parentprojectmd.org.

(This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and Sibs Track are not included in this scholarship.) PPMD partners with organizations who provide travel assistance to qualified families. If you would like to connect with an organization about travel assistance, please indicate this on your application.

Email *

Please provide your information below.

First Name *

Last Name *

Street 1 *

Street 2

City *

State *

Zip *

Country *

Phone Number *

Child's Date of Birth *

YYYY

When was your child diagnosed? (Month and Year) *

If you have more than 1 child with Duchenne, please list additional date(s) of birth and date(s) of diagnosis here:

Has your family ever attended PPMD's Annual Conference? *

Check here if you like to be connected with an organization about potential assistance with travel costs.

Yes

Is your child registered in The Duchenne Registry? *

Name(s) of children and email address used to register them in The Duchenne Registry (so we can verify that your child(ren) is/are registered)? *

Do you understand this program and scholarship is limited to two adults per family? *

Do you understand you must cover all other expenses, to include but not limited to: airfare, airport transfers, hotel accommodations? *

If another adult will be attending the sessions with you, please indicate their name here:

A copy of your responses will be emailed to the address you provided.

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